‘Lyme Runner’ beats crippling disease (Printed July 23, 2010)

By Gillian Graham

Staff Writer

 

Angela Coulombe’s life changed forever after crossing the finish line of the 2007 Beach to Beacon 10K road race in Cape Elizabeth.

“Right as I crossed the finish line, my right knee was bothering me,” said the 45-year-old Saco resident.

She first thought she had aggravated an old injury and headed to physical therapy. As weeks passed she began to ache all over and her joints “felt a bit funky.” The aches led to intense pain that prevented her from getting out of bed led to a bull’s-eye on her arm and a diagnosis of Lyme disease.

Three years later, after struggling to get out of bed and regaining her strength, Coulombe is training to run the New York City Marathon in November, documenting her journey as the “Lyme Runner” on her blog, www.lymerunner.com.

Coulombe, who has always been active, said she decided to run the marathon to raise awareness about chronic Lyme disease, raise money for research and “to give people hope they can get well, too.” Training for the race also allows her to see how far she’s come since the days when her husband, Andrew Woznica, had to help her get dressed.

After her Lyme disease diagnosis in 2007, Coulombe took a three-week course of strong antibiotics prescribed by an infectious-disease doctor.

“At the end of the three weeks I was even worse off,” she said. “I couldn’t do anything. It was excruciating to do anything.”

The doctor told her the pain was from “old age and arthritis” and she’d just have to deal with it, she said.

“How could I have gone in two months from being so active to an invalid?” she said. “I felt utter despair and horror. I couldn’t accept I could be in this position for the rest of my life. I became very accepting of the fact that small progress was what it was going to be.”

Coulombe kept a diary of her progress over the past three years and documented how she felt and what she did. She said she likely will always have Lyme disease and manages her symptoms with diet and by eliminating stress.

By April 2009, Coulombe said felt she could get back to the gym. She stepped on the treadmill in her basement to run a mile. It took her 45 minutes. A couple days later, she ran a mile in 35 minutes. Now, off all medications, she runs a mile in 7 minutes and trains with runs nearly every day.

Coulombe said she has the support of her husband and sons, 12-year-old Oliver and 7-year-old Elliot. All three stood by her during periods of excruciating pain and cheer on her accomplishments, she said.

Elliot, who is looking forward to going to the Statue of Liberty in November, said it made him sad to see his mom sick. It is good she can run again, he said.

Coulombe said she is looking forward to November, when friends and family will crowd the race route to cheer her on.

“I imagine I’ll probably cry when I finish,” she said. “It feels hugely emotional.”

Despite her training schedule and her work as a Web designer and photographer, Coulombe makes time for Lyme Buddies, a program she started with a friend to provide people with Lyme disease a “buddy” to talk to about the disease. She said talking to someone who understands what you’re going through is a lifeline during a time that can lead to depression. 

Coulombe said she tries to spread information about prevention of Lyme disease. Before her diagnosis, she rarely did tick checks – a habit she called “naïve.” She now does checks that include running her hands over her skin to feel for tiny ticks that carry the disease. Developing these habits is essential to ensure both adults and children are protected from the disease, she said.

“I can’t imagine this happening to kids because it is so painful and devastating,” she said. “It takes every ounce of every thing you’ve got to fight it. To come through the other side takes a real fighting spirit.”

 

Staff Writer Gillian Graham can be reached at 282-4337, ext. 213.

 

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  • 7/25/2010 5:30 PM Dolores Claesson wrote:
    Congratulations Angela, I am thrilled to hear you have kicked those tick borne diseases and can resume a normal life. I too hope that everyone in my family will be able to do the same. My 17 year old daughter has missed 2 years of high school with this dreadful disease. Others near me have not been as fortunate. Jennifer Pesci a 45 year old woman near me just died of lyme disease and its complications but the Infectious Disease Society is still busy ignoring chronic lyme. All of these deaths are on their heads and one day I hope to live long enough to see them pay dearly for their maliciousness. We need to have more research to figure out these tick borne diseases. It is shameful that America, one of the richest countries in the world is ignoring this epidemic. What are the people at the Centers for Disease Control and the National Institute of Health and the Red Cross doing about these infections. Our entire blood supply is compromised with the lack of screening for tick borne diseases. I am appalled that our lives mean so little that the government is allowing insurance companies to get away with not paying for much needed IV antibiotics for people suffering miserably with NeuroBorreliosis. Could we be the next Tuskegee airmen study where they are seeing the long term effect of the spirochetal infection, Borrelia or lyme disease. Our government withheld treatment of American Black servicemen to see the long term effects of another spirochetal infection, Syphillis. It is time the American public woke up and fought for justice. Unfortunately the lyme sufferers are too ill to fight back. Thank you Gillian Graham for writing a much needed article to expose this epidemic to the public that our government seems to be suppressing. Good Luck to all with lyme and may we be as healthy as Angela in the very near future.
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  • 7/25/2010 6:26 PM Deb wrote:
    Thanks for sharing your story. I haven't been able to run since I've had Lyme disease, but I'm going to try again this fall and see what happens. I end up with severe headaches whenever I've tried in the past.
    I completed 18 mos of oral antibiotics and 6 weeks of IV antibiotics and I think I finally have beat this debilitating disease.
    I need to find out why I get headaches when I try running. My GP says...don't run...walk. Not a good answer when you are a runner. I can't just stop running, I have for the past 6 years and now I want it back.
    I had mostly neurological symptoms and seem to be symptom free or at least about 85% symptom free so I'm hoping for the best. Good luck with the marathon, I'd be overjoyed with a mile!
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